CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12892 Echocardiogram left ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the left ventricle on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12409 Pulmonary gas exchange measurement type

The type of gas exchange measurement used on participant/subject

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18882 Cardiovascular Holter exam ventricular dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type', specifying other text. Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12392 Respiratory inspiratory positive airway pressure positive inspiratory pressure value

Value of the inspiratory positive airway pressure or positive inspiratory pressure

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12275 Biopsy and autopsy absent immunoreactivity assay name

Absent immunoreactivity

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12900 Echocardiogram left ventricle end systolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00021 Ethnicity USA paternal category

Ethnicity the participant's father most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12417 Pulmonary blood gas bicarbonate value

The numeric value of the bicarbonate (HCO3) level in the blood

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10731 Echocardiogram right atrial enlargement status

Status of right atrial enlargement on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19671 Family history current decease age value

Value of current age or age at death for relative with the disease in question

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12240 Biochemical or genetic test performed indicator

Indicator of whether subsequent biochemical or genetic testing was performed

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18835 Respiratory device other text

The free-text field related to 'Respiratory device type' specifying other text. Type of airway clearance or secretion mobilization device(s) used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17899 Preservation technique not used indicator

Indicates preservation technique used is not known

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12251 Biopsy and autopsy atrophy or hypotrophy type

Atrophy/ hypertrophy type

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 301 - 325 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.