CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12835 ECG bundle branch block type

Type of any complete or incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12272 Western Blot result

Result of the assay(s) performed

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12397 Respiratory support use frequency

Frequency of ventilation device use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12520 Specimen type 1 fiber muscle biopsy percent result number

Result for type 1 fiber muscle biopsy percent

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12405 Respiratory other therapies description text

Text describing other relevant therapies for the participant's/subject's respiration system

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12764 Electrophysiology tilt study blood pressure change result

Blood Pressure changes experienced from a tilt test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12772 Electrophysiology long exercise test post-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded post- long exercise

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17954 Cardiovascular Holter exam atrial dysrhythmia episode duration

Duration, in seconds, of the atrial dysrhythmia episode

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 126 - 150 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.