CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12526 Biopsy and autopsy type 1 predominance fiber percentage value

Percentage of Type 1 predominance fiber present

 Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

 Supplemental Measures of Gas Exchange False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12252 Biopsy and autopsy fiber size variation result type

Distribution of the atrophic fibers

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12260 Biopsy and autopsy perivascular inflammation type

Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12831 ECG atrioventricular block first degree status

Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12268 Immunohistochemical stain used muscle biopsy and autopsy type

Which immunohistochemical stains were used on muscle biopsy?

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12609 Education level paternal USA type

Indicator of the highest level of education completed by the participant/subject's father

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12410 Pulmonary gas exchange fraction of inspired oxygen value

The fraction of inspired oxygen (FIO2) in the blood

 Supplemental Measures of Gas Exchange False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12393 Respiratory positive end-expiratory pressure expiratory positive airway pressure value

Value of the positive end-expiratory pressure (PEEP)/expiratory positive airway pressure (EPAP)

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12276 Biopsy and autopsy mitochondria abnormality type

Type of mitochondria abnormality in muscle biopsy

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12231 Laboratory name

Name of laboratory where assessment was performed

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 476 - 500 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.