CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12362	C12362	Respiratory other airway clearance method session time	Time it takes per session for the participant/subject to use the other airway clearance method	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12322	C12322	Respiratory mechanical in-exsufflator inhale pressure value	Value of the inhale pressure setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12761	C12761	Electrophysiology quantitative sweat function distal leg measurement	The amount of sweat collected on the distal leg	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C17902	C17902	Elevated creatine kinase value	The elevated creatine kinase value	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C17461	C17461	Cancer history type text	Text description of the type of cancer the participant/subject was or is diagnosed with	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12254	C12254	Biopsy and autopsy myopathy-associated pathological structures type	The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C18846	C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12262	C12262	Biopsy and autopsy microorganisms name	Name of microorganisms identified in biopsy or autopsy specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10585	C10585	Imaging phase partial Fourier indicator	Indicator of whether phase partial Fourier was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12833	C12833	ECG atrioventricular block third degree complete status	Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12391	C12391	Respiratory assessment type	Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12270	C12270	Biopsy and autopsy antibodies used name	List the names of antibodies used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12412	C12412	Pulmonary gas exchange end tidal transcutaneous carbon dioxide value	The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12395	C12395	Respiratory pressure support value	Value of the pressure support	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12518	C12518	Endomysial fibrosis severity status	Severity of the Endomysial fibrosis muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12233	C12233	Preservation technique used type	Type of preservation technique used to preserve the specimen	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1823-C00032	C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12420	C12420	Pulmonary gas exchange oxygen saturation less 90 percent value	The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.