CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19708 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator

Indicator of weakness felt within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19752 Gene mutation myotonic dystrophy repeat assessment count

Count of copy numbers of the mutated allele length

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19709 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale

Scale of amount of weakness within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19753 Gene mutation myotonic dystrophy repeat assessment length value

Length of the mutated allele

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19676 Muscle disease hereditary type

Specify if muscle disease type is hereditary

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19710 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator

Indicator of tiredness or fatigue within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19519 Disease condition associated name

Name of associated disease/condition

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19668 Family history medical condition relationship type

Relationship of the family member with the medical condition or health related event to the participant/subject

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19677 Muscle disease inflammatory type

Specify if muscle disease type is inflammatory

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19711 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale

Scale of amount of tiredness or fatigue within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19520 Subject affected indicator

Indicator for the subject's being affected

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 26 - 50 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.