CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 736
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21934 Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale

Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19753 Gene mutation myotonic dystrophy repeat assessment length value

Length of the mutated allele

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21945 Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale

Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21955 Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale

Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19677 Muscle disease inflammatory type

Specify if muscle disease type is inflammatory

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19711 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale

Scale of amount of tiredness or fatigue within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21935 Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale

Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21946 Pediatric Quality of Life Inventory (PedsQL) - Problem play energy peer difficulty scale

Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21956 Pediatric Quality of Life Inventory (PedsQL) - Problem sad difficulty scale

Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19668 Family history medical condition relationship type

Relationship of the family member with the medical condition or health related event to the participant/subject

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19519 Disease condition associated name

Name of associated disease/condition

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19704 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator

Indicator of stiffness felt within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21948 Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale

Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21957 Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale

Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19749 Mutational analysis tissue specimen type

Type of tissue used for analysis

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 1 - 25 of 736

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.