CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18833 Pulmonary function test not done other text

The free-text field related to 'Pulmonary function test not done reason' specifying other text. Reason the pulmonary function test was attempted but not completed

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10785 Electrophysiology motor unit number estimation value

Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

 Supplemental Demographics False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18778 ECG ventricular arrhythmia other text

The free-text field related to 'ECG ventricular arrhythmia type' specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12754 Electrophysiology mean circular result

The mean circular result (MCR) measured during autonomic function testing

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04512 ECG QTc interval

Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10786 Electrophysiology motor unit number estimation nerve type

Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

 Supplemental Demographics False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02498 Imaging scanner software version number

Version number of the imaging scanner software

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Calculated z-score for the left atrial antero - posterior dimension measured with echocardiography

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 176 - 200 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.