C12331
Respiratory manual cough assist session time
The duration of manual cough assist use per session
Supplemental
Respiratory Interventions
False
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C17461
Cancer history type text
Text description of the type of cancer the participant/subject was or is diagnosed with
Supplemental
Medical History
False
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C17506
Cardiac MRI result comment text
Results comments on the cardiac Magnetic Resonance Imaging results
Supplemental
Cardiac Magnetic Resonance Imaging (MRI)
False
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C18793
Medical history condition other text
The free-text field related to 'Medical history condition type' specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant/subject or found documented in the medical record
Supplemental
Medical History
False
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08521
36-item Short Form Health Survey (SF-36) - Bodily pain score
Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08529
36-item Short Form Health Survey (SF-36) - Times worn out score
Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08514
36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator
Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08522
36-item Short Form Health Survey (SF-36) - Pain interfere work score
Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08530
36-item Short Form Health Survey (SF-36) - Times happy score
Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08506
36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score
Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08507
36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score
Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08515
36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator
Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08523
36-item Short Form Health Survey (SF-36) - Times pep score
Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08531
36-item Short Form Health Survey (SF-36) - Times tired score
Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08508
36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score
Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08524
36-item Short Form Health Survey (SF-36) - Times nervous score
Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08532
36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score
Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08509
36-item Short Form Health Survey (SF-36) - Health limited walking miles score
Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08525
36-item Short Form Health Survey (SF-36) - Times down score
Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08500
36-item Short Form Health Survey (SF-36) - General health score
Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08518
36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator
Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08502
36-item Short Form Health Survey (SF-36) - Now heath score
Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08511
36-item Short Form Health Survey (SF-36) - Health limited walking one block score
Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08527
36-item Short Form Health Survey (SF-36) - Times energy score
Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
C08503
36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score
Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy