CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1060-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12268	C12268	Immunohistochemical stain used muscle biopsy and autopsy type	Which immunohistochemical stains were used on muscle biopsy?	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12316	C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12310	C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12317	C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12315	C12315	Pulmonary function forced vital capacity leak indicator	Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12318	C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12314	C12314	Pulmonary function forced vital capacity cough exhalation indicator	Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12313	C12313	Pulmonary function maximal pressure trial difference indicator	Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C17874	C17874	Pulmonary function test not done indicator	Was the pulmonary function test not done	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12717	C12717	Electrophysiology repetitive nerve stimulation study stimulus intensity value	Value, in mV, of stimulation intensity in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12743	C12743	Electrophysiology neuromuscular jitter mean consecutive difference average value	Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12715	C12715	Electrophysiology repetitive nerve stimulation study stimulation rate value	Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12722	C12722	Electrophysiology repetitive nerve high frequency	Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10858	C10858	Grip strength target value	Value of the target grip strength for the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10596	C10596	Imaging slice over sampling value	Value of the slice over sampling (as a percentage) used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12850	C12850	Cardiac MRI left ventricle non-compaction ratio value	Value of the ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12395	C12395	Respiratory pressure support value	Value of the pressure support	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12393	C12393	Respiratory positive end-expiratory pressure expiratory positive airway pressure value	Value of the positive end-expiratory pressure (PEEP)/expiratory positive airway pressure (EPAP)	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.