CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12306 Ulna length measurement

The length of the ulna of the participant/subject

 Supplemental Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12315 Pulmonary function forced vital capacity leak indicator

Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C11099 Pulmonary function test type

Type of pulmonary function testing performed

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19710 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator

Indicator of tiredness or fatigue within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19711 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale

Scale of amount of tiredness or fatigue within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19704 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator

Indicator of stiffness felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19705 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment scale

Scale of amount of stiffness within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19706 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment indicator

Indicator of pain felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19707 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment scale

Scale of amount of pain within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19708 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator

Indicator of weakness felt within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19709 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale

Scale of amount of weakness within the last 24 hours

 Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19756 Gene mutation myotonic dystrophy detect method type

The type of methods used to detect detect repeat interruptions

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19749 Mutational analysis tissue specimen type

Type of tissue used for analysis

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19757 Gene mutation myotonic dystrophy other variant indicator

The indicator related to whether there were any additional variants/mutations in the specified genes

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19750 Gene mutation myotonic dystrophy detected type

Type mutations detected

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19758 Target RNA alternative splicing indicator

The indicator of whether there were target RNA species for alternative splicing investigated

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 151 - 175 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.