CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10858	C10858	Grip strength target value	Value of the target grip strength for the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10859	C10859	Grip strength fatigue percent target value	Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10860	C10860	Grip strength fatigue percent target hold duration	Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10865	C10865	Dynamometry hand held muscle test performed date	Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10867	C10867	Dynamometry hand held muscle test performed anatomic site	The type of muscle tested using hand held dynamometry	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10869	C10869	Dynamometry hand held muscle test result	The results of the trial performed by the participant/subject on the hand held dynamometer	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10871	C10871	Dynamometry hand held muscle test able to break technique indicator	Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10872	C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.