CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17506 Cardiac MRI result comment text

Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12872 Echocardiogram mitral valve stenosis degree status

Status of the degree of mitral valve stenosis as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12891 Echocardiogram right ventricle function status

Status of right ventricle function on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12899 Echocardiogram right ventricle end diastolic volume index measurement

Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurement of the left atrial antero-posterior dimension obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12907 Echocardiogram right ventricle non-compaction status

Status of non-compaction in the right ventricle on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10743 Echocardiogram tricuspid valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17961 Cardiovascular aortic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12864 Echocardiogram left atrial dimension measurement

Measurement of the left atrial dimension obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 26 - 50 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.