CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1056-C12839	C12839	Cardiac MRI ventricle end diastolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C17899	C17899	Preservation technique not used indicator	Indicates preservation technique used is not known	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12409	C12409	Pulmonary gas exchange measurement type	The type of gas exchange measurement used on participant/subject	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12251	C12251	Biopsy and autopsy atrophy or hypotrophy type	Atrophy/ hypertrophy type	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12384	C12384	Respiratory tracheostomy tube length measurement	Measurement of the length of the tracheostomy tube	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12392	C12392	Respiratory inspiratory positive airway pressure positive inspiratory pressure value	Value of the inspiratory positive airway pressure or positive inspiratory pressure	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1829-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12342	C12342	Respiratory lung volume recruitment inhale pressure value	Value of the inhale pressure setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C17957	C17957	Cardiovascular Holter exam premature ventricular contraction number	Number or premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12847	C12847	Cardiac MRI left ventricle mass index value	Value of the left ventricle mass as obtained by cardiac MRI divided by the participant/subject's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12417	C12417	Pulmonary blood gas bicarbonate value	The numeric value of the bicarbonate (HCO3) level in the blood	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19522	C19522	Muscle disease hereditary type specify text	Specify text for type of hereditary muscle disease	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12259	C12259	Biopsy and autopsy inflammation type	Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12830	C12830	ECG conduction block status	Status of a conduction block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12350	C12350	Respiratory high frequency chest wall oscillation system use daily frequency	Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C17962	C17962	Cardiovascular tricuspid stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1907-C01720	C01720	Lab test LOINC code	Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12699	C12699	Electrophysiology motor nerve amplitude measurement	The measured amplitude of signal response to test stimulation during the motor nerve conduction study	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12865	C12865	Echocardiogram left atrial volume measurement	Volume of the left atrium measured with echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12750	C12750	Electrophysiology motor unit number estimation surface motor unit action potential average count	Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C54237	C54237	Echocardiogram pericardial effusion abnormal text	Free-text field to describe pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.