CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 526 - 550 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12888 Echocardiogram right ventricle ejection fraction measurement

Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12271 Western Blot assay performed name

Name(s) of the assay performed

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12861 Cardiac MRI quality result

Result of evaluation of the quality of the cardiac MRI being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12806 Gene protein variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12356 Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time

Time the intrapulmonary percussive ventilation or MetaNeb device was in use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12536 Imaging dimension type

Type of imaging dimension used

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12712 Electrophysiology blink reflex test R1 latency value

Duration of R1 latency in the blink reflex test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12364 Respiratory airway clearance medication name

Name of the airway clearance medication used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12324 Respiratory mechanical in-exsufflator inhale duration

Value of the inhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12763 Electrophysiology tilt study heart rate change result

Heart rate changes experienced from a tilt test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12930 Cardiovascular Holter exam ventricular dysrhythmia type

Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 526 - 550 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.