CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00204 Employment current status

Status of participant/subject's current employment

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10566 Imaging radio frequency coil name

Name of the radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12870 Echocardiogram pulmonic valve stenosis degree status

Status of the degree of pulmonic valve stenosis as assessed by echocardiography

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18848 Respiratory support positive pressure device delivery method other text

The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10778 Electrophysiology motor unit number estimation muscle studied name

Name of the muscle studied using the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12264 Biopsy and autopsy abnormal cell name

List of abnormal cell types found in biopsy

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12889 Echocardiogram right ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12835 ECG bundle branch block type

Type of any complete or incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

 Supplemental Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12349 Respiratory high frequency chest wall oscillation system use frequency

Frequency of use of the high frequency chest wall oscillation system

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10596 Imaging slice over sampling value

Value of the slice over sampling (as a percentage) used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Hand Held Dynamometry False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17506 Cardiac MRI result comment text

Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12357 Respiratory medication nebulized type

Type of the medication(s) nebulized

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 451 - 475 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.