CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18850 Respiratory tracheostomy tube timing other text

The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12266 Biopsy and autopsy excessive intracellular lipid severity grade

Severe lipid storage pathology involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild lipid storage pathology is difficult to determine at the light microscopic level and may only be evident on Oil Red O stain or on electron microscopy

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12891 Echocardiogram right ventricle function status

Status of right ventricle function on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17966 ECG result text

Text description of any electrocardiogram (ECG) result selected other than Normal

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18880 Cardiovascular Holter exam atrial dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type', specifying other text. Type of atrial dysrhythmia detected during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12855 Cardiac MRI myocardial scar result status

Status of the result of evaluation of the cardiac magnetic resonance imaging (MRI) for my ocardial scarring on the selected ventricle

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12698 Electrophysiology motor nerve segment length measurement

The nerve segment length measured during the motor nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12351 Respiratory high frequency chest wall oscillation system session time

Time of high frequency chest wall oscillation system use per session

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12747 Electrophysiology motor unit number estimation surface motor unit action potential average value

Average surface motor unit action potentials (sMUAPs), estimated using the designated MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17929 Cardiac MRI overall impression text

Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19749 Mutational analysis tissue specimen type

Type of tissue used for analysis

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12706 Electrophysiology sensory nerve amplitude measurement

The amplitude measured during the sensory nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12359 Respiratory other airway clearance method name

Name of airway clearance method used by the participant/subject other than mechanical in-exsufflator, manual cough assist, manual percussion, postural drainage, lung volume recruitment, and intrapulmonary percussive ventilation

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12539 Imaging fluid attenuated inversion recovery sequence indicator

Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12319 Respiratory device type

Type of airway clearance or secretion mobilization device(s) used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12758 Electrophysiology blood pressure response Valsalva phase IV result

The blood pressure response to valsalva maneuver during Phase IV

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12917 Cardiovascular Holter predominant heart rhythm type

Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19757 Gene mutation myotonic dystrophy other variant indicator

The indicator related to whether there were any additional variants/mutations in the specified genes

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12715 Electrophysiology repetitive nerve stimulation study stimulation rate value

Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 301 - 325 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.