CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12249 Biopsy and Autopsy histochemical stains diagnostic abnormalities present type

The diagnostic abnormalities present on the histochenmical stains for the participant's/subject's tissue

 Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (EKG) was administered

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12312 Pulmonary function index of lung function best trial measurement

The best trial of the index of lung function trials performed for pulmonary function test (PFT) measures

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12526 Biopsy and autopsy type 1 predominance fiber percentage value

Percentage of Type 1 predominance fiber present

 Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C04502 ECG global result type

Result in qualitative terms of the electrocardiogram (EKG) being reported

 Supplemental-Highly Recommended Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12304 Pulmonary function test equipment model name

Name of model of the pulmonary function test equipment

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12313 Pulmonary function maximal pressure trial difference indicator

Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water

 Supplemental-Highly Recommended Pulmonary Function Testing False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12527 Biopsy and autopsy type 2 predominance fiber percentage value

Percentage of Type 2 predominance fiber present

 Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12350 Respiratory high frequency chest wall oscillation system use daily frequency

Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Hand Held Dynamometry False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12753 Electrophysiology expiratory inspiratory ratio

Ratio of the expiratory time to the inspiratory time during the breathing cycle measured during autonomic function testing

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

 Supplemental Holter Examination False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19752 Gene mutation myotonic dystrophy repeat assessment count

Count of copy numbers of the mutated allele length

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12709 Electrophysiology blink reflex test electrode type

Type of electrode used for the blink reflex test

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12358 Respiratory intrapulmonary percussive ventilation cup liquid type

Type of liquid in the intrapulmonary percussive ventilation cup

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 26 - 50 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.