CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12897 Echocardiogram right ventricle end diastolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10727 Echocardiogram left ventricular internal dimension end diastole measurement

Measurement of left ventricular end - diastolic internal dimension (LVIDd) obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12397 Respiratory support use frequency

Frequency of ventilation device use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12520 Specimen type 1 fiber muscle biopsy percent result number

Result for type 1 fiber muscle biopsy percent

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19668 Family history medical condition relationship type

Relationship of the family member with the medical condition or health related event to the participant/subject

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12905 Echocardiogram left ventricular mass index measurement

Measurement of the left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density, corrected for body surface area obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12405 Respiratory other therapies description text

Text describing other relevant therapies for the participant's/subject's respiration system

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12913 Echocardiogram study quality type

Type of quality of the echocardiogram study

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18840 Respiratory lung volume recruitment use other text

The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17904 Biopsy and autopsy pathological inclusions text

Text describing pathological inclusions (if any)

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19519 Disease condition associated name

Name of associated disease/condition

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18878 Echocardiogram result other text

The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12256 Biopsy and autopsy eccentric nuclei estimated fibers percent value

Estimated percent of fibers in eccentric nuclei

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 226 - 250 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.