CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17880 Respiratory support ventilation device other model name

Name of other support ventilation device used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12531 Biopsy autopsy excessive glycogen severity result

Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12914 Echocardiogram result status

Status of the global results of the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12248 Pathologist name

Name of pathologist who diagnosed the case

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12863 Echocardiogram left atrium view type

Type of view of the left atrium on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18841 Respiratory high frequency chest wall oscillation system vest other text

The free-text field related to 'Respiratory high frequency chest wall oscillation system vest type' specifying other text. Type of vest used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17905 Biopsy and autopsy abnormal storage material text

Text describing biopsy or autopsy material that has been stored abnormally

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19520 Subject affected indicator

Indicator for the subject's being affected

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C54234 Echocardiogram right interventricular septal thickness end diastole measurement

Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12257 Biopsy and autopsy nemaline rod type

Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12871 Echocardiogram aortic valve stenosis degree status

Status of the degree of aortic valve stenosis as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18849 Respiratory support negative pressure device delivery method other text

The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12342 Respiratory lung volume recruitment inhale pressure value

Value of the inhale pressure setting for the lung volume recruitment device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12854 Cardiac MRI gadolinium contrast use indicator

Indicator of whether gadolinium-based contrast was used for the cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12697 Electrophysiology motor nerve latency value

The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12350 Respiratory high frequency chest wall oscillation system use daily frequency

Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 201 - 225 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.