CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 426 - 450 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19677 Muscle disease inflammatory type

Specify if muscle disease type is inflammatory

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12903 Echocardiogram right ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12349 Respiratory high frequency chest wall oscillation system use frequency

Frequency of use of the high frequency chest wall oscillation system

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12911 Echocardiogram right ventricle systolic pressure estimation type

Type of technique used to estimate the right ventricular systolic pressure

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10751 Echocardiogram tissue doppler mitral annulus E' velocity measurement

Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12357 Respiratory medication nebulized type

Type of the medication(s) nebulized

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17790 Dynamometry hand held time

Time the hand held dynamometry was performed

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12399 Respiratory support schedule use time day type

The type as it relates to the time(s) of day the ventilation device is used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12539 Imaging fluid attenuated inversion recovery sequence indicator

Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12770 Electrophysiology long pre-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded pre- long exercise

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12727 Electrophysiology repetitive nerve postactivation area measurement

Measurement, in mVms, of the area of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 426 - 450 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.