CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12520 Specimen type 1 fiber muscle biopsy percent result number

Result for type 1 fiber muscle biopsy percent

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19668 Family history medical condition relationship type

Relationship of the family member with the medical condition or health related event to the participant/subject

 Supplemental Family History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17958 Cardiovascular Holter exam fastest run tachycardia episode value

Value of the heart rate during the fastest run of a tachycardia episode

 Supplemental Holter Examination False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12848 Cardiac MRI left ventricle non-compaction result status

Status of the result of the evaluation of the left ventricle for non-compaction as observed by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12345 Respiratory lung volume recruitment cycle number count

Count of the number of cycles completed per session of lung volume recruitment device use

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12353 Respiratory intrapulmonary percussive ventilation or MetaNeb type

Type of intrapulmonary percussive ventilation or MetaNeb device used

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

 Supplemental Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10867 Dynamometry hand held muscle test performed anatomic site

The type of muscle tested using hand held dynamometry

 Supplemental Hand Held Dynamometry False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17904 Biopsy and autopsy pathological inclusions text

Text describing pathological inclusions (if any)

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19519 Disease condition associated name

Name of associated disease/condition

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12256 Biopsy and autopsy eccentric nuclei estimated fibers percent value

Estimated percent of fibers in eccentric nuclei

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00204 Employment current status

Status of participant/subject's current employment

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 401 - 425 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.