CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1907-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12733	C12733	Needle electromyography motor unit action potential complexity percent value	The complexity of the motor unit action potential measured during needle electromyography	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C10783	C10783	Electrophysiology motor unit number estimation compound muscle action potential measurement	Measurement in millivolts (mV) of the compound muscle action potential (CMAP) amplitude for the muscle on which MUNE (motor unit number estimation) is performed	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C19736	C19736	Respiration intervention invasive tracheostomy tube indicator	Indicator of invasive respiratory support including a tracheostomy tube	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C17959	C17959	Cardiovascular Holter exam longest run tachycardia episode value	Value of the longest run of a tachycardia episode during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12388	C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12849	C12849	Cardiac MRI left ventricle trabeculations count	Count of trabeculations in the left ventricle when non-compaction is present	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12517	C12517	Fatty replacement severity status	Severity of the Fatty replacement muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12346	C12346	Respiratory lung volume recruitment breath per cycle count	Count of the number of breaths per cycle of lung volume recruitment device use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10593	C10593	Imaging fat signal suppressed indicator	Indicator as to whether or not fat signal was suppressed in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12902	C12902	Echocardiogram left ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12232	C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12859	C12859	Cardiac MRI other cardiac anatomy structure result status	Status of the result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12354	C12354	Respiratory intrapulmonary percussive ventilation or MetaNeb frequency	Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C12508	C12508	Imaging radio frequency coil function type	The function of the radio frequency (RF) coil used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19673	C19673	Family history relative decease indicator	Indicator for whether relative with the disease in question is deceased	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12910	C12910	Echocardiogram right atrial pressure measurement	Right atrial pressure measured by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12242	C12242	Biochemical or genetic test result value	Results of the biochemical or genetic test performed on the specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10869	C10869	Dynamometry hand held muscle test result	The results of the trial performed by the participant/subject on the hand held dynamometer	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1823-C19518	C19518	Country of origin name	Name of patient/participant's country of origin	Supplemental	Demographics	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

Displaying 351 - 375 of 675

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.