CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19673 Family history relative decease indicator

Indicator for whether relative with the disease in question is deceased

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12910 Echocardiogram right atrial pressure measurement

Right atrial pressure measured by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10746 Echocardiogram late mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12718 Electrophysiology repetitive nerve stimulation study preactivation number

The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12407 Pulmonary gas exchange assessment date

The assessment date of the gas exchange measurement

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12337 Respiratory postural drainage session time

Time it takes per session for the participant/subject to use postural drainage therapy

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12769 Electrophysiology long pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12937 Cardiovascular Holter exam arrhythmia symptom description text

Free-text field describing symptoms documented during arrhythmias detected during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12415 Pulmonary blood gas partial pressure carbon dioxide value

The numeric value of the blood gas partial pressure of carbon dioxide (PCO2) in the blood

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12398 Respiratory support schedule daily hour value

Value of the number of hours of daily ventilation device use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12345 Respiratory lung volume recruitment cycle number count

Count of the number of cycles completed per session of lung volume recruitment device use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17959 Cardiovascular Holter exam longest run tachycardia episode value

Value of the longest run of a tachycardia episode during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12734 Needle electromyography motor unit action potential stable indicator

The stability of the action potential measure during needle electromyography

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 276 - 300 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.