CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 736
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12525 Biopsy and autopsy fiber abnormality type

Fiber type abnormalities on a muscle biopsy

Core Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12226 Specimen source type

Type of specimen collection source

Core Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19708 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator

Indicator of weakness felt within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19709 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale

Scale of amount of weakness within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19710 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator

Indicator of tiredness or fatigue within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19711 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale

Scale of amount of tiredness or fatigue within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19704 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator

Indicator of stiffness felt within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19705 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment scale

Scale of amount of stiffness within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19706 Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment indicator

Indicator of pain felt within the last 24 hours

Exploratory Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 1 - 25 of 736

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.