CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 736
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12531 Biopsy autopsy excessive glycogen severity result

Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17461 Cancer history type text

Text description of the type of cancer the participant/subject was or is diagnosed with

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10602 Cardiac MRI ejection fraction measurement

The ejection fraction percentage measured by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12854 Cardiac MRI gadolinum contrast use indicator

Indicator of whether the contrast used for the cardiac MRI was gadolinum-based

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12860 Cardiac MRI intracardiac finding type

Types of intracardial findings observed by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12847 Cardiac MRI left ventricle mass index value

Value of the left ventricle mass as obtained by cardiac MRI divided by the participant/subject's body surface area in square meters

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10603 Cardiac MRI left ventricle mass measurement

Measurement in grams of the mass of the left ventricle as obtained by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12850 Cardiac MRI left ventricle non-compaction ratio value

Ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12848 Cardiac MRI left ventricle non-compaction result

Result of the evaluation of the left ventricle for non-compaction as observed by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12851 Cardiac MRI left ventricle noncompaction position anatomic site

Anatomic site or position on the left ventrical of any non-compaction observed by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12846 Cardiac MRI left ventricle posterior wall thickness measurement

Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12845 Cardiac MRI left ventricle septal thickness measurement

Measurement of the thickness of the interventricular septum of the left ventricle as obtained by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12849 Cardiac MRI left ventricle trabeculations count

Count of trabeculations in the left ventricle when non-compaction is present

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17928 Cardiac MRI myocardial scar anatomic site

Where myocardial scar was/was not detected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12855 Cardiac MRI myocardial scar result

Result of evaluation of the cardiac MRI for mycocardial scarring on the selected ventricle

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12857 Cardiac MRI myocardial scar segment anatomic site

Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12859 Cardiac MRI other cardiac anatomy structure result

Result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17929 Cardiac MRI overall impression text

Text description of the overall impression of the cardiac MRI being reported

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12861 Cardiac MRI quality result

Result of evaluation of the quality of the cardiac MRI being reported

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 76 - 100 of 736

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.