CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12517 Fatty replacement severity status

Severity of the Fatty replacement muscle diagnostic abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00035 Gender type

Self-reported gender of the participant/subject

 Core Demographics False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12804 Gene cDNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19756 Gene mutation myotonic dystrophy detect method type

The type of methods used to detect detect repeat interruptions

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19750 Gene mutation myotonic dystrophy detected type

Type mutations detected

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19757 Gene mutation myotonic dystrophy other variant indicator

The indicator related to whether there were any additional variants/mutations in the specified genes

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19752 Gene mutation myotonic dystrophy repeat assessment count

Count of copy numbers of the mutated allele length

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19753 Gene mutation myotonic dystrophy repeat assessment length value

Length of the mutated allele

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19751 Gene mutation myotonic dystrophy repeat length assessment indicator

Indicator of whether the mutated repeated allele's length was analyzed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12803 Gene variant mutation implications confirmed mRNA analysis indicator

Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Supplemental Grip Strength Fatigue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 326 - 350 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.