CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 951 - 975 of 1067

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1049-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12502	C12502	Imaging anterior commissure change status	Status related to changes in the anterior limb internal capsule observed in the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12173	C12173	Dual X-ray absorptiometry scan anatomical site	Site on the body that was scanned for dual X-ray absorptiometry (DXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12336	C12336	Respiratory postural drainage use daily frequency	Frequency of postural drainage use if it is used daily	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12213	C12213	Gastrointestinal therapy continuous feed start time	Time of day that the participant/subject's continuous feeding is normally begun	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12447	C12447	Polysomnography blood oxygen saturation drop hour awake count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C10959	C10959	Spectroscopy spectral bandwidth value	Spectral bandwidth, in Hertz per pixel, used for both metabolite and water signal reference data acquisitions	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1055-C10585	C10585	Imaging phase partial Fourier indicator	Indicator of whether phase partial Fourier was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C12912	C12912	Echocardiogram pericardial effusion abnormal indicator	Indicator of whether there is pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12182	C12182	Dual X-ray absorptiometry lumbar spine Z score	Dual X-ray absorptiometry (DEXA) Lspine Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12344	C12344	Respiratory lung volume recruitment pause time value	Value for the pause time setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12223	C12223	Gastrointestinal therapy other oral intake estimate caloric value	Value of the subject/participant's caloric intake received through other oral intake	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12455	C12455	Polysomnography transcutaneous carbon dioxide measurement grade	Grade of the transcutaneous CO2 (TcCO2) measurements being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2129-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Exploratory	Modified Rankin Scale (mRS)	True	Myasthenia Gravis	Myasthenia Gravis (MG)
F1084-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Core	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1993-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C17973	C17973	Ethnic race relation indicator	Indicator of the participant/subject's relation to the person about whom the following questions on ethnic and racial identity apply	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12779	C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C12652	C12652	Myasthenia Gravis Foundation of America (MGFA) - post-intervention status	The Myasthenia Gravis Foundation of America (MGFA) post intervention status	Core	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)

Displaying 951 - 975 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.