CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1067
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17881 Respiratory support ventilation mode negative pressure text

Text specifying the negative pressure support ventilation used by the support ventilation device

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12365 Respiratory airway clearance medication concentration value

Value of the concentration of the airway clearance medication used

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C12327 Respiratory mechanical in-exsufflator session cycle set count

Count of the number of cycles completed per session when participant/subject used the mechanical in-exsufflator

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental Mutation Analysis Myasthenia Gravis Myasthenia Gravis (MG)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C12267 Biopsy and autopsy liver biopsy autopsy results

The results of the liver biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12645 Institute of Neurology Carlo Besta (INNCB) Myasthenia Gravis scale - muscle fatigue score

Participant/Subject's Muscle fatigability score for the Fondazione Istituto Neurologico "Carlo Besta" (INNCB) Myasthenia Gravis Scale

Supplemental MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12335 Respiratory postural drainage use frequency

Frequency of postural drainage use

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C12446 Polysomnography blood oxygen saturation drop hour non-REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Examination Myasthenia Gravis Myasthenia Gravis (MG)
C12275 Biopsy and autopsy absent immunoreactivity assay name

Absent immunoreactivity

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C54237 Echocardiogram pericardial effusion abnormal text

Free-text field to describe pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C12655 Global impression change physician score

The physician reported global impression of change score

Supplemental MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12482 Imaging cortex lissencephaly (LIS type 1) thickness measurement

The measurement of cortex thickness, in , of the lissencephaly (LIS type 1) site

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12343 Respiratory lung volume recruitment inhale time value

Value for the inhale time setting for the lung volume recruitment device

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12305 Pulmonary function test equipment software program name

The software program used in the pulmonary function test equipment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12525 Biopsy and autopsy fiber abnormality type

Fiber type abnormalities on a muscle biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.