CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10952 Spectroscopy water suppression type

Indicator of water suppression method used, if any, for the spectroscopy scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Prenatal and Perinatal History False Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Core Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12649 Myasthenia Gravis Activities of Daily Living (MG-ADL) - score

Participant/Subject's Myasthenia Gravis Activities of Daily Living (MG-ADL) score (0-24)

 Supplemental Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12179 Dual X-ray absorptiometry hip Z score

Dual X-ray absorptiometry (DEXA) Hip Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12341 Respiratory lung volume recruitment session time

Time of lung volume recruitment use per session

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12220 Gastrointestinal therapy estimate caloric intake value

Value of the participant/subject's caloric intake received through formula

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12452 Polysomnography end tidal carbon dioxide non-REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during non-rapid eye movement (REM) sleep

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Myasthenia Gravis Myasthenia Gravis (MG)
C12390 Respiratory ventilation mode synchronized intermittent mandatory ventilation pressure support type

Type of synchronized intermittent mandatory ventilation (SIMV) with pressure support ventilation used

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12832 ECG atrioventricular block second degree status

Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Myasthenia Gravis Myasthenia Gravis (MG)
C12739 Electrophysiology neuromuscular jitter electrode type

The type of electrode used for the neuromuscular jitter test

 Supplemental Electrophysiology - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C12641 Medication side effect or complication indicator

Whether the participant/subject reports side effects or complications due to the medication

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C17901 Elevated creatine kinase Indicator

Indicator of whether participant/subject experienced elevated creatine kinase levels

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12542 Imaging nuclei type

The type as related to nuclei in the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12398 Respiratory support schedule daily hour value

Value of the number of hours of daily ventilation device use

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12253 Biopsy and autopsy atrophy or hyportrophy fiber shape type

Atrophic/ hypertrophic fiber shape

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12356 Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time

Time the intrapulmonary percussive ventilation or MetaNeb device was in use

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12776 Electrophysiology neuromuscular jitter pair or endplate normal limit value

Value of the pair/endplate normal limit recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12282 Tissue abnormality myelination type

Type of any observed myelination in the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

 Supplemental Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C17943 Spectroscopy geometry matrix in-plane size value

Value of the in-plane matrix size, if applicable for the spectroscopy scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 101 - 125 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.