CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Supplemental Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12205 Gastrointestinal therapy feed tube placement method type

Type of method by which the participant/subject's feeding tube was placed

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C12809 Imaging chest result

Result of the chest imaging study

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C10938 Imaging STEAM mixing duration

Duration, in ms, of the STEAM mixing time (TM) as a spectroscopic sequence parameter in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Myasthenia Gravis Myasthenia Gravis (MG)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12214 Gastrointestinal therapy continuous feed end time

Time of day that the participant/subject's continuous feeding is normally ended

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12459 Polysomnography transcutaneous carbon dioxide awake value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C10960 Spectroscopy PRESS symmetry type

Whether the echo time (TE) used in the PRESS (double spin-echo) sequence is symmetrically or asymmetrically divided

Supplemental Magnetic Resonance Spectroscopy (MRS) Myasthenia Gravis Myasthenia Gravis (MG)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C12239 Electron microscopy performed indicator

Indicator of whether electron microscopy was performed

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C17931 Imaging magnetic resonance imaging performed indicator

Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C18865 Symptom first experienced distribution other text

The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12183 Dual X-ray absorptiometry proximal femur raw score

Dual X-ray absorptiometry (DEXA) proximal femur raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C12224 Gastrointestinal therapy feed schedule start date

Date on which the feeding schedule for gastrointestinal therapy began

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C17878 Polysomnography limited type text

Text description of the polysomnography being reported if it is not a full polysomnography

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.