CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1057-C18857	C18857	Imaging brainstem abnormality other text	The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1043-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests and Tracking	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12486	C12486	Imaging other cortical abnormality type	The type of other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12320	C12320	Respiratory mechanical in-exsufflator device use frequency	Frequency of use of the mechanical in-exsufflator by the participant/subject	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12424	C12424	Pulmonary gas exchange highest end tidal transcutaneous carbon dioxide value	The highest pressure of the end tidal CO2 (ETCO2) or transcutaneous CO2 (TCCO2) check while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12431	C12431	Polysomnography apnea hypopnea index type	Type of Apnea-Hypopnea Index (AHI) event for which results are being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12310	C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1089-C12610	C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12494	C12494	Imaging pons abnormal indicator	Indicator of whether the pons appears normal or abnormal in the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12328	C12328	Respiratory mechanical in-exsufflator session cycle breath count	Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12204	C12204	Gastrointestinal therapy fundoplication age value	Value of the participant/subject's age at which s/he had fundoplication surgery	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12439	C12439	Polysomnography blood oxygen saturation distribution percent value	The value of the blood oxygen saturation (SpO2) percentage for which sleep distribution results are being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12291	C12291	Tissue specimen counting threshold type	Type of threshold for counting in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12318	C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12715	C12715	Electrophysiology repetitive nerve stimulation study stimulation rate value	Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C17909	C17909	Tissue specimen comment other text	Text description of any other comments pertaining to the pathology examination of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1053-C10589	C10589	Imaging shot count	The number of shots used in the imaging echo-planner acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12385	C12385	Respiratory tracheostomy tube cuffed indicator	Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C12827	C12827	ECG axis direction indicator	Indicator of the direction of any axis deviation apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12723	C12723	Electrophysiology repetitive nerve activation duration	Duration, in sec, of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.