CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 17 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1085-C18865	C18865	Symptom first experienced distribution other text	The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder	Core	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C12652	C12652	Myasthenia Gravis Foundation of America (MGFA) - post-intervention status	The Myasthenia Gravis Foundation of America (MGFA) post intervention status	Core	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12814	C12814	Thymectomy videoscopic type	The type of videoscopic thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1076-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Core	Medical History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12780	C12780	Test assay abnormality type	Whether the result of the confirmatory diagnostic test was normal or abnormal	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1084-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Core	Family History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C18863	C18863	Birth location state other text	The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1077-C12810	C12810	Diagnosis thymoma type	Type of thymoma observed	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1087-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Core	MG Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1043-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Core	Laboratory Tests and Tracking	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1088-C12815	C12815	Thymectomy transsternal type	The type of transsternal thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1076-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Core	Medical History - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.