CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 951 - 975 of 1067

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1049-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12501	C12501	Imaging internal capsule type indicator	The condition of the internal capsule	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12172	C12172	Dual X-ray absorptiometry beam technique type	The type of beam technique used for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12335	C12335	Respiratory postural drainage use frequency	Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12212	C12212	Gastrointestinal therapy feed duration	Duration of feedings received by the participant/subject	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12446	C12446	Polysomnography blood oxygen saturation drop hour non-REM sleep count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C10958	C10958	Spectroscopy spectral points count	Count of the spectroscopic sequence parameter of spectral points used in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1055-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C12911	C12911	Echocardiogram right ventricle systolic pressure estimation type	Type of technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1994-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1085-C12651	C12651	Oosterhuis score	Oosterhuis score for Myasthenia Gravis	Supplemental	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12181	C12181	Dual X-ray absorptiometry lumbar spine T score	Dual X-ray absorptiometry (DEXA) Lspine T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C10751	C10751	Echocardiogram tissue doppler mitral annulus E' velocity measurement	Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12343	C12343	Respiratory lung volume recruitment inhale time value	Value for the inhale time setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12222	C12222	Gastrointestinal therapy other oral intake text	Text of other nutriment taken orally, if any	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12454	C12454	Polysomnography transcutaneous carbon dioxide measured indicator	Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2129-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Exploratory	Modified Rankin Scale (mRS)	True	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C12691	C12691	Medication prior or concomitant response text	Description of the response to the medication	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1993-C12226	C12226	Specimen source type	Type of specimen collection source	Core	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1082-C12611	C12611	Birth location state name	Name of the state/province/similar political division in which participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)

Displaying 951 - 975 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.