CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12603 Birth length value

Measurement of the participant's/subject's length at birth

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Core Social Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12298 Pulmonary function test not done reason

Reason the pulmonary function test was attempted but not completed

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12304 Pulmonary function test equipment model name

Name of model of the pulmonary function test equipment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12305 Pulmonary function test equipment software program name

The software program used in the pulmonary function test equipment

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12306 Ulna length measurement

The length of the ulna of the participant/subject

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
C12310 Pulmonary function complete exhalation indicator

Whether the complete amount of air was exhaled from the participant/subject

Supplemental Pulmonary Function Testing Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.