CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1067
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18863 Birth location state other text

The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12780 Test assay abnormality type

Whether the result of the confirmatory diagnostic test was normal or abnormal

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Core MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01706 Lab test result text

Result of the laboratory test

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12810 Diagnosis thymoma type

Type of thymoma observed

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C19533 Immunomodulating agent other specify

The free-text field related to Immunomodulating agent, specify specifying other text

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

Core Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18830 Tissue specimen collection anatomic site other text

The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Peripheral Nerves - Biopsies and Autopsies Myasthenia Gravis Myasthenia Gravis (MG)
C12781 Test assay result

Result of the confirmatory diagnostic test or assay performed

Core Confirmatory Diagnostic Tests - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Myasthenia Gravis Myasthenia Gravis (MG)
C12816 Thymus non-thymoma histology grade

Results from the non-thymoma thymus histology

Core Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Core Medical History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18701 Imaging modality type other text

The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant

Core Chest Imaging - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.