CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1039-C12205	C12205	Gastrointestinal therapy feed tube placement method type	Type of method by which the participant/subject's feeding tube was placed	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12440	C12440	Polysomnography percent sleep time total percent blood oxygen saturation value	Value representing the amount of total sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12516	C12516	Pulmonary function lung function measurement	Numeric result of index function of the lungs tested	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1995-C12807	C12807	Gene second disease allele indicator	Indicator of whether a second disease allele was identified	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1058-C10938	C10938	Imaging STEAM mixing duration	Duration, in ms, of the STEAM mixing time (TM) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1091-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12378	C12378	Respiratory support negative pressure device delivery method type	Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1060-C10743	C10743	Echocardiogram tricuspid valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C04513	C04513	ECG ST segment abnormality status	Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12716	C12716	Electrophysiology repetitive nerve stimulation study stimulus duration	Duration, in ?s, of stimulation in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1053-C10590	C10590	Imaging interpolation indicator	Whether the k-space data were interpolated before applying Fourier transform	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1056-C12843	C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C19736	C19736	Respiration intervention invasive tracheostomy tube indicator	Indicator of invasive respiratory support including a tracheostomy tube	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12521	C12521	Specimen type 2 fiber muscle biopsy percent result number	Result for type 2 fiber muscle biopsy percent	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12386	C12386	Respiratory tracheostomy tube timing type	Type of inflation/deflation timing settings for cuffed tubes	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C12828	C12828	ECG atrial enlargement right status	Status of right atrial enlargement present or absent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12724	C12724	Electrophysiology repetitive nerve postactivation elapsed time duration	Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1053-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C12931	C12931	Cardiovascular Holter exam premature ventricular contraction percentage value	Value of the percent of premature ventricular contractions the participant experienced during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12237	C12237	Specimen overall interpretation status	Status of the overall assessment of the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1056-C12851	C12851	Cardiac MRI left ventricle noncompaction position anatomic site	Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.