CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1067
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C12648 Myasthenia gravis composite score

Participant/Subject's Myasthenia Gravis (MG) Composite score (0-50)

Supplemental Medical History of MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myasthenia Gravis Myasthenia Gravis (MG)
C12178 Dual X-ray absorptiometry hip T score

Dual X-ray absorptiometry (DEXA) Hip T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12332 Respiratory manual percussion use frequency

Frequency of use of manual percussion therapy

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12443 Polysomnography percent awake time percent blood oxygen saturation value

Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental Mutation Analysis Myasthenia Gravis Myasthenia Gravis (MG)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C12645 Institute of Neurology Carlo Besta (INNCB) Myasthenia Gravis scale - muscle fatigue score

Participant/Subject's Muscle fatigability score for the Fondazione Istituto Neurologico "Carlo Besta" (INNCB) Myasthenia Gravis Scale

Supplemental MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12186 Dual X-ray absorptiometry distal femur raw score

Dual X-ray absorptiometry (DEXA) distal femur raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C18827 Gastrointestinal therapy nutrition supplement other text

The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Myasthenia Gravis Myasthenia Gravis (MG)
C12419 Pulmonary gas exchange average oxygen saturation value

The average oxygen saturation value while the participant/subject is sleeping

Supplemental Measures of Gas Exchange Myasthenia Gravis Myasthenia Gravis (MG)
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Examination Myasthenia Gravis Myasthenia Gravis (MG)
C54237 Echocardiogram pericardial effusion abnormal text

Free-text field to describe pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Myasthenia Gravis Myasthenia Gravis (MG)
C12655 Global impression change physician score

The physician reported global impression of change score

Supplemental MG Status - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12194 Dual X-ray absorptiometry right arm lean value

Right arm lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C12482 Imaging cortex lissencephaly (LIS type 1) thickness measurement

The measurement of cortex thickness, in , of the lissencephaly (LIS type 1) site

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Core Laboratory Tests and Tracking Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.