CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12810 Diagnosis thymoma type

Type of thymoma observed

 Core Chest Imaging - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18838 Respiratory manual percussion use other text

The free-text field related to 'Respiratory manual percussion use frequency' specifying other text. Frequency of use of manual percussion therapy

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C10942 Imaging voxel anatomic site

The anatomic site in which the voxel is located (e.g., brain left frontal white matter)

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

 Supplemental Prenatal and Perinatal History False Myasthenia Gravis Myasthenia Gravis (MG)
C10566 Imaging radio frequency coil name

Name of the radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12369 Respiratory airway clearance medication frequency

Value of the frequency the participant/subject uses the airway clearance medication

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C18846 Respiratory other airway clearance method use other text

The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Myasthenia Gravis Myasthenia Gravis (MG)
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Vital Signs False Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12184 Dual X-ray absorptiometry proximal femur T score

Dual X-ray absorptiometry (DEXA) proximal femur T score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

 Supplemental Measures of Gas Exchange False Myasthenia Gravis Myasthenia Gravis (MG)
C01012 Physical exam body system result type

Assessment result of each body system examined

 Supplemental Physical Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12653 Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) - score

The participant/subject's 15-item Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) score

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12458 Polysomnography transcutaneous carbon dioxide non-REM sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12279 Specimen immunohistochemical stain name

Name of immunohistochemical stain used on tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Myasthenia Gravis Myasthenia Gravis (MG)
C19533 Immunomodulating agent other specify

The free-text field related to Immunomodulating agent, specify specifying other text

 Core Prior and Current Treatments for MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 76 - 100 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.