CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12532 Gastrointestinal therapy feed tube first place date

Date on which the participant/subject's feeding tube was first placed

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C01012 Physical exam body system result type

Assessment result of each body system examined

 Supplemental Physical Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C12653 Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) - score

The participant/subject's 15-item Myasthenia Gravis Quality-of-Life Scale (MG-QOL15) score

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C18826 Gastrointestinal therapy feed tube other text

The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12418 Pulmonary blood gas base excess value

The numeric value for the amount of base excess or deficit in the blood

 Supplemental Measures of Gas Exchange False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

 Supplemental Surgical History False Myasthenia Gravis Myasthenia Gravis (MG)
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12514 Dual X-ray absorptiometry distal forearm T score

The T score for the dual X-ray absorptiometry (DEXA) of the distal forearm

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C01706 Lab test result text

Result of the laboratory test

 Core Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C12488 Imaging subcortical cyst indicator

Indicator of whether subcortical cysts are found in the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

 Supplemental Measures of Gas Exchange False Myasthenia Gravis Myasthenia Gravis (MG)
C12285 Tissue specimen collection anatomic site

Anatomic site from which the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12312 Pulmonary function index of lung function best trial measurement

The best trial of the index of lung function trials performed for pulmonary function test (PFT) measures

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C12206 Gastrointestinal therapy medication type

Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12810 Diagnosis thymoma type

Type of thymoma observed

 Core Chest Imaging - MG False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 301 - 325 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.