CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

 Supplemental Surgical History False Myasthenia Gravis Myasthenia Gravis (MG)
C18858 Imaging pons abnormality other text

The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12814 Thymectomy videoscopic type

The type of videoscopic thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12513 Dual X-ray absorptiometry distal forearm raw score

The score for the dual X-ray absorptiometry (DEXA) of the distal forearm

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12321 Respiratory mechanical in-exsufflator device use daily frequency

Frequency of daily use of the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Measures of Gas Exchange False Myasthenia Gravis Myasthenia Gravis (MG)
C12432 Polysomnography apnea hypopnea index type total event count

Count of total sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Myasthenia Gravis Myasthenia Gravis (MG)
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

 Supplemental Death Report False Myasthenia Gravis Myasthenia Gravis (MG)
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Supplemental Laboratory Tests and Tracking False Myasthenia Gravis Myasthenia Gravis (MG)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12329 Respiratory manual cough assist use frequency

Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12205 Gastrointestinal therapy feed tube placement method type

Type of method by which the participant/subject's feeding tube was placed

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12440 Polysomnography percent sleep time total percent blood oxygen saturation value

Value representing the amount of total sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C12809 Imaging chest result

Result of the chest imaging study

 Core Chest Imaging - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C10938 Imaging STEAM mixing duration

Duration, in ms, of the STEAM mixing time (TM) as a spectroscopic sequence parameter in the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Myasthenia Gravis Myasthenia Gravis (MG)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Core Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C12337 Respiratory postural drainage session time

Time it takes per session for the participant/subject to use postural drainage therapy

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12214 Gastrointestinal therapy continuous feed end time

Time of day that the participant/subject's continuous feeding is normally ended

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12448 Polysomnography end tidal carbon dioxide measured indicator

Indicator of whether end-Tidal CO2 (ETCO2) was measured in the polysomnography being reported

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 251 - 275 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.