CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12323	C12323	Respiratory mechanical in-exsufflator exhale pressure value	Value of the exhale pressure setting for the mechanical in-exsufflator used by the participant/subject	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12198	C12198	Gastrointestinal therapy received indicator	Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12434	C12434	Polysomnography apnea hypopnea index type non-REM event count	Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C12286	C12286	Tissue specimen section thickness measurement	Measurement in microns of the thickness of the section taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C12313	C12313	Pulmonary function maximal pressure trial difference indicator	Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12497	C12497	Imaging cerebellum abnormality type	The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12442	C12442	Polysomnography percent sleep time non-REM percent blood oxygen saturation value	Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1979-C17875	C17875	Pulmonary function test text	Other type of pulmonary function testing performed	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1055-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12177	C12177	Dual X-ray absorptiometry hip raw score	Dual X-ray absorptiometry (DEXA) Hip raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12339	C12339	Respiratory lung volume recruitment use frequency	Frequency of lung volume recruitment use	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12217	C12217	Gastrointestinal therapy continuous feed formula rate	Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12718	C12718	Electrophysiology repetitive nerve stimulation study preactivation number	The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F2000-C18831	C18831	Tissue specimen section quantify other text	The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12525	C12525	Biopsy and autopsy fiber abnormality type	Fiber type abnormalities on a muscle biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1037-C12388	C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1991-C12830	C12830	ECG conduction block status	Status of a conduction block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12726	C12726	Electrophysiology repetitive nerve postactivation amplitude measurement	Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1059-C12934	C12934	Cardiovascular Holter exam ventricular contraction count	Number of occurrences of the specific type of ventricular contraction	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1983-C12239	C12239	Electron microscopy performed indicator	Indicator of whether electron microscopy was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1038-C12413	C12413	Pulmonary blood gas type	The type of blood gas collected	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.