CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12331	Respiratory manual cough assist session time	The duration of manual cough assist use per session	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Exploratory	Modified Rankin Scale (mRS)	True	Myasthenia Gravis	Myasthenia Gravis (MG)
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17506	Cardiac MRI result comment text	Results comments on the cardiac Magnetic Resonance Imaging results	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17807	Imaging parallel acquisition details text	Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17793	Imaging diffusion fourth b value	Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00003	Postnatal age value	Time elapsed after birth of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12940	Birth head circumference value	Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12691	Medication prior or concomitant response text	Description of the response to the medication	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17972	Medication prior concomitant dose frequency Clinical Data Interchange Standards Consortium Standard Data Tabulation Model code	Code that represents the frequency of the dosage of the prior or concomitant medication administered. Clinical Data Interchange Standards Consortium Standard Data Tabulation Model (CDISC SDTM)	Supplemental	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12671	Surgery lifetime total count	Total number of surgeries the participant/subject has undergone in his/her lifetime	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12672	Surgical or therapeutic procedure ventilated indicator	Whether the participant/subject was ventilated during the surgical or therapeutic procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12603	Birth length value	Measurement of the participant's/subject's length at birth	Supplemental	Prenatal and Perinatal History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12287	Tissue specimen section count	Count of the number of sections from the tissue specimen that were taken and evaluated	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12314	Pulmonary function forced vital capacity cough exhalation indicator	Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.