CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Exploratory Modified Rankin Scale (mRS) Myasthenia Gravis Myasthenia Gravis (MG)
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Myasthenia Gravis Myasthenia Gravis (MG)
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17795 Imaging diffusion third b value

Value, in square millimeters per second, of the third b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
C12691 Medication prior or concomitant response text

Description of the response to the medication

Core Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C17972 Medication prior concomitant dose frequency Clinical Data Interchange Standards Consortium Standard Data Tabulation Model code

Code that represents the frequency of the dosage of the prior or concomitant medication administered. Clinical Data Interchange Standards Consortium Standard Data Tabulation Model (CDISC SDTM)

Supplemental Prior and Current Treatments for MG - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Myasthenia Gravis Myasthenia Gravis (MG)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C12669 Height or length measurement type

Type of height or length measurement taken

Supplemental Vital Signs Myasthenia Gravis Myasthenia Gravis (MG)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Myasthenia Gravis Myasthenia Gravis (MG)
C12350 Respiratory high frequency chest wall oscillation system use daily frequency

Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C17883 Gastrointestinal therapy water flush status

The status of whether water was used to flush the participant/subject's feeding tube, if applicable

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 1 - 25 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.