CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant's death

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Myasthenia Gravis Myasthenia Gravis (MG)
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Myasthenia Gravis Myasthenia Gravis (MG)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12611 Birth location state name

Name of the state/province/similar political division in which participant was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C18863 Birth location state other text

The free-text field related to 'Birth location state name', specifying other text. Name of the state/province/similar political division in which participant was born

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00005 Birth country name

Name for country where the participant was born

Supplemental Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant was born

Supplemental Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00022 Ethnicity USA maternal category

Ethnicity the participant's mother most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00033 Race USA maternal category

Race(s) the participant's mother most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00021 Ethnicity USA paternal category

Ethnicity the participant's father most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00032 Race USA paternal category

Race(s) the participant's father most closely identifies with

Core Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Myasthenia Gravis Myasthenia Gravis (MG)
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Exploratory Modified Rankin Scale (mRS) Myasthenia Gravis Myasthenia Gravis (MG)
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Diffusion Tensor Imaging (DTI) Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.