CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1039-C12532	C12532	Gastrointestinal therapy feed tube first place date	Date on which the participant/subject's feeding tube was first placed	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1036-C12425	C12425	Polysomnography study date	Date on which the polysomnography (sleep study) being reported was performed	Supplemental	Polysomnography	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1063-C05105	C05105	Surgical or therapeutic procedure end date and time	Date on which the surgical or therapeutic procedure ended	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1080-C12779	C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12175	C12175	Dual X-ray absorptiometry performed date	Date the dual X-ray absorptiometry (DXA) was performed	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1083-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C12691	C12691	Medication prior or concomitant response text	Description of the response to the medication	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1049-C12252	C12252	Biopsy and autopsy fiber size variation result type	Distribution of the atrophic fibers	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1053-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1055-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1057-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1081-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Core	Prior and Current Treatments for MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12216	C12216	Gastrointestinal therapy feed formula dose	Dose, in mL, of formula that the participant/subject receives at each feeding for non-continuous feeding	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1039-C12221	C12221	Gastrointestinal therapy water flush dose	Dose, with unit of measurement, of water used to flush the participant/subject's feeding tube, if applicable	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12186	C12186	Dual X-ray absorptiometry distal femur raw score	Dual X-ray absorptiometry (DEXA) distal femur raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12187	C12187	Dual X-ray absorptiometry distal femur T score	Dual X-ray absorptiometry (DEXA) distal femur T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12188	C12188	Dual X-ray absorptiometry distal femur Z score	Dual X-ray absorptiometry (DEXA) distal femur Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12177	C12177	Dual X-ray absorptiometry hip raw score	Dual X-ray absorptiometry (DEXA) Hip raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12178	C12178	Dual X-ray absorptiometry hip T score	Dual X-ray absorptiometry (DEXA) Hip T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12179	C12179	Dual X-ray absorptiometry hip Z score	Dual X-ray absorptiometry (DEXA) Hip Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12180	C12180	Dual X-ray absorptiometry lumbar spine raw score	Dual X-ray absorptiometry (DEXA) Lspine raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12181	C12181	Dual X-ray absorptiometry lumbar spine T score	Dual X-ray absorptiometry (DEXA) Lspine T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12182	C12182	Dual X-ray absorptiometry lumbar spine Z score	Dual X-ray absorptiometry (DEXA) Lspine Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1054-C12183	C12183	Dual X-ray absorptiometry proximal femur raw score	Dual X-ray absorptiometry (DEXA) proximal femur raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.