CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant/subject's death	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born	Supplemental	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00005	Birth country name	Name for country where the participant/subject was born	Supplemental	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12611	Birth location state name	Name of the state/province/similar political division in which participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17973	Ethnic race relation indicator	Indicator of the participant/subject's relation to the person about whom the following questions on ethnic and racial identity apply	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18863	Birth location state other text	The free-text field related to 'Birth location state name' specifying other text. Name of the state/province/similar political division in which participant/subject was born	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Core	Demographics - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17793	Imaging diffusion fourth b value	Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18715	Imaging radio frequency coil other text	The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08241	Imaging field of view axis 1 measurement	Axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18656	Imaging diffusion fifth b value	Value, in square millimeters per second, of the fifth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.