CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1026 - 1050 of 1067

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12286	Tissue specimen section thickness measurement	Measurement in microns of the thickness of the section taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12293	Tissue specimen intraepidermal nerve fiber density value	Value of the intraepidermal nerve fiber density in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18831	Tissue specimen section quantify other text	The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12287	Tissue specimen section count	Count of the number of sections from the tissue specimen that were taken and evaluated	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Core	Social Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Core	Social Status - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18759	Surgery reason indication other text	The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C05105	Surgical or therapeutic procedure end date and time	Date on which the surgical or therapeutic procedure ended	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08020	Surgery reason indication type	Reason participant/subject is in need of surgery	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12671	Surgery lifetime total count	Total number of surgeries the participant/subject has undergone in his/her lifetime	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12672	Surgical or therapeutic procedure ventilated indicator	Whether the participant/subject was ventilated during the surgical or therapeutic procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12816	Thymus non-thymoma histology grade	Results from the non-thymoma thymus histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12817	Thymoma histology grade	The World Health Organization (WHO) grade for thymoma histology	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17982	Thymectomy procedure comment text	Additional text commenting the thymectomy procedure	Supplemental	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12811	Thymectomy date and time	Date and time (if applicable and known) thymectomy procedure was performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12812	Thymectomy technique type	Type of technique used for the thymectomy procedure	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12813	Thymectomy transcervical type	The type of transcervical thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12814	Thymectomy videoscopic type	The type of videoscopic thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12815	Thymectomy transsternal type	The type of transsternal thymectomy performed	Core	Thymectomy - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)

Displaying 1026 - 1050 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.