CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12849	Cardiac MRI left ventricle trabeculations count	Count of trabeculations in the left ventricle when non-compaction is present	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12860	Cardiac MRI intracardiac finding type	Types of intracardial findings observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12842	Cardiac MRI ventricle end diastolic volume index value	Value of the selected ventricle's end diastolic volume measurement divided by the participant/subject's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12850	Cardiac MRI left ventricle non-compaction ratio value	Ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12851	Cardiac MRI left ventricle noncompaction position anatomic site	Anatomic site or position on the left ventrical of any non-compaction observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12861	Cardiac MRI quality result	Result of evaluation of the quality of the cardiac MRI being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12852	Cardiac MRI atrium area measurement	Measurement of the area of the selected atrium as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17506	Cardiac MRI result comment text	Results comments on the cardiac Magnetic Resonance Imaging results	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C10602	Cardiac MRI ejection fraction measurement	The ejection fraction percentage measured by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12844	Cardiac MRI ventricle end systolic volume index value	Value of the selected ventricle's end systolic volume measurement divided by the participant/subject's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02437	Imaging modality type	Type of radiologic study performed on the participant/subject	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12809	Imaging chest result	Result of the chest imaging study	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12810	Diagnosis thymoma type	Type of thymoma observed	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18701	Imaging modality other text	The free-text field related to 'Imaging modality type' specifying other text. Type of radiologic study performed on the participant/subject	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18876	Diagnosis thymoma other text	The free-text field related to 'Diagnosis thymoma type' specifying other text. Type of thymoma observed	Core	Chest Imaging - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12777	Confirmatory diagnostic test assay type	Name of the confirmatory diagnostic test/assay used	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12778	Test assay perform indicator	Indicator of whether the confirmatory diagnostic test/assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12780	Test assay abnormality type	Whether the result of the confirmatory diagnostic test was normal or abnormal	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12781	Test assay result	Result of the confirmatory diagnostic test or assay performed	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18872	Confirmatory diagnostic test assay other text	The free-text field related to 'Confirmatory diagnostic test assay type' specifying other text. Name of the confirmatory diagnostic test/assay used	Core	Confirmatory Diagnostic Tests - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C04800	Death cause text	Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Death Report	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.