CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18866 Family history muscle disease other text

The free-text field related to 'Family history muscle disease type' specifying other text. Type of muscle disease for which participant/subject has family history

Supplemental Family History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Core Family History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C19521 Thyroid condition type

Type of thyroid condition

Supplemental Family History - MG Myasthenia Gravis Myasthenia Gravis (MG)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12237 Specimen overall interpretation status

Status of the overall assessment of the specimen

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C17897 Histological finding other comment text

Text describing the participant's comments about the histological findings

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12226 Specimen source type

Type of specimen collection source

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Core Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C12236 Biopsy amyloid present on Congo red stain indicator

Indicator of whether there was biopsy amyloid present on the Congo Red stain

Supplemental-Highly Recommended Fat Aspirate Tissue Specimens Myasthenia Gravis Myasthenia Gravis (MG)
C18826 Gastrointestinal therapy feed tube other text

The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12206 Gastrointestinal therapy medication type

Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12216 Gastrointestinal therapy feed formula dose

Dose, in mL, of formula that the participant/subject receives at each feeding for non-continuous feeding

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12532 Gastrointestinal therapy feed tube first place date

Date on which the participant/subject's feeding tube was first placed

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C18827 Gastrointestinal therapy nutrition supplement other text

The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12198 Gastrointestinal therapy received indicator

Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
C12217 Gastrointestinal therapy continuous feed formula rate

Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding

Supplemental Gastrointestinal Therapies Myasthenia Gravis Myasthenia Gravis (MG)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.