CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1067
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12320 Respiratory mechanical in-exsufflator device use frequency

Frequency of use of the mechanical in-exsufflator by the participant/subject

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12431 Polysomnography apnea hypopnea index type

Type of Apnea-Hypopnea Index (AHI) event for which results are being reported

 Supplemental Polysomnography False Myasthenia Gravis Myasthenia Gravis (MG)
C12217 Gastrointestinal therapy continuous feed formula rate

Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12367 Respiratory airway clearance medication daily frequency

Value of the daily frequency of usage of the airway clearance medication

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

 Supplemental Mutation Analysis False Myasthenia Gravis Myasthenia Gravis (MG)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C17961 Cardiovascular aortic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve

 Supplemental Echocardiogram False Myasthenia Gravis Myasthenia Gravis (MG)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Vital Signs False Myasthenia Gravis Myasthenia Gravis (MG)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12644 Institute of Neurology Carlo Besta (INNCB) Myasthenia Gravis scale - total score

Participant/Subject's total score for the Fondazione Istituto Neurologico "Carlo Besta" (INNCB) Myasthenia Gravis Scale

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12185 Dual X-ray absorptiometry proximal femur Z Score

Dual X-ray absorptiometry (DEXA) proximal femur Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
C12864 Echocardiogram left atrial dimension measurement

Measurement of the left atrial dimension obtained by echocardiography

 Supplemental Echocardiogram False Myasthenia Gravis Myasthenia Gravis (MG)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

 Supplemental Gastrointestinal Therapies False Myasthenia Gravis Myasthenia Gravis (MG)
C12469 Imaging magnetic resonance imaging session number

Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C12376 Respiratory positive pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device

 Supplemental Respiratory Interventions False Myasthenia Gravis Myasthenia Gravis (MG)
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

 Supplemental Physical Examination False Myasthenia Gravis Myasthenia Gravis (MG)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Pulmonary Function Testing False Myasthenia Gravis Myasthenia Gravis (MG)
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

 Supplemental Echocardiogram False Myasthenia Gravis Myasthenia Gravis (MG)
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

 Supplemental Mutation Analysis False Myasthenia Gravis Myasthenia Gravis (MG)
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Myasthenia Gravis Myasthenia Gravis (MG)
C12654 Global impression change patient score

The patient reported global impression of change score

 Supplemental MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 176 - 200 of 1067

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.