CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12646	Quantitative Myasthenia Gravis (QMG) - score	Participant/Subject's Quantitative Myasthenia Gravis (QMG) score (0-39)	Supplemental	Medical History of MG - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12187	Dual X-ray absorptiometry distal femur T score	Dual X-ray absorptiometry (DEXA) distal femur T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12866	Echocardiogram left atrial area measurement	Area of the left atrium measured from apical 4-chamber view using echocardiography	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12349	Respiratory high frequency chest wall oscillation system use frequency	Frequency of use of the high frequency chest wall oscillation system	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12535	Gastrointestinal therapy feed schedule end date	Date on which the feeding schedule for gastrointestinal therapy ended, if applicable	Supplemental	Gastrointestinal Therapies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12717	Electrophysiology repetitive nerve stimulation study stimulus intensity value	Value, in mV, of stimulation intensity in the repetitive nerve study being recorded	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12936	Cardiovascular Holter exam symptomatic during arrhythmias indicator	Whether the participant/subject was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12857	Cardiac MRI myocardial scar segment anatomic site	Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12543	Imaging anatomical reference sequence text	Text specification of the anatomical reference image sequence in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12398	Respiratory support schedule daily hour value	Value of the number of hours of daily ventilation device use	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12253	Biopsy and autopsy atrophy or hyportrophy fiber shape type	Atrophic/ hypertrophic fiber shape	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12356	Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time	Time the intrapulmonary percussive ventilation or MetaNeb device was in use	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12725	Electrophysiology repetitive nerve postactivation number	The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study	Supplemental	Electrophysiology - MG	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Fastest run of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental	Pulmonary Function Testing	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C02498	Imaging scanner software version number	Version number of the imaging scanner software	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17944	Spectroscopy geometry voxel slice size left value	Value, in mm, of voxel or slice left-right size for the spectroscopy scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12540	Imaging T2 measurement indicator	Indicator of whether T2 measurement was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.