CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12277	Biospecimen fragment collect count	Count of fragments collected in the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12236	Biopsy amyloid present on Congo red stain indicator	Indicator of whether there was biopsy amyloid present on the Congo Red stain	Supplemental-Highly Recommended	Fat Aspirate Tissue Specimens	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12369	Respiratory airway clearance medication frequency	Value of the frequency the participant/subject uses the airway clearance medication	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08500	36-item Short Form Health Survey (SF-36) - General health score	Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Myasthenia Gravis	Myasthenia Gravis (MG)
C54237	Echocardiogram pericardial effusion abnormal text	Free-text field to describe pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12832	ECG atrioventricular block second degree status	Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18854	Imaging other incidental finding other text	The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12194	Dual X-ray absorptiometry right arm lean value	Right arm lean muscle mass for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12873	Echocardiogram tricuspid stenosis degree status	Assessment with echocardiography of whether there is stenosis of the tricuspid valve of the heart	Supplemental	Echocardiogram	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests and Tracking	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12483	Imaging cortex-polymicrogyria indicator	Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12420	Pulmonary gas exchange oxygen saturation less 90 percent value	The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12379	Respiratory negative pressure device initiation date	Date of initiation of non-invasive, negative pressure	Supplemental	Respiratory Interventions	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C12788	Gene exon copy number tested indicator	Whether the copy number was directly tested for all exons	Supplemental	Mutation Analysis	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C08509	36-item Short Form Health Survey (SF-36) - Health limited walking miles score	Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental	Short Form 36-Item Health Survey (SF-36)	True	Myasthenia Gravis	Myasthenia Gravis (MG)
C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Myasthenia Gravis	Myasthenia Gravis (MG)
C18777	ECG heart rhythm result other text	The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myasthenia Gravis	Myasthenia Gravis (MG)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.